Proving that there can still be a full life after suffering a stroke, an enterprising group of survivors have set up a new charity to enable their drop-in group to continue to meet regularly in Hove.
The group originally met through the charity ConnectUK, but at the end of last year Connect closed their doors through lack of funding, which left the Hove drop-in group devastated. Not to be defeated though, this resourceful group decided that if they wanted to continue the good work of the charity that had brought them together, they would have to do something about it themselves.
So, ‘Say Aphasia’ was set up and registered with the Charity Commission in January, and is already attracting new members to the drop-in group that meets every Friday in the Central United Reformed Church in Hove.
Aphasia is the condition that affects many stroke sufferers leading to problems with speech and communication, which can in turn lead to feelings of isolation and low self-esteem. What ‘Say Aphasia’ can do is introduce people to a group of like-minded sufferers, in an environment where they can all help each other with complete understanding of the condition. Over 2000 people in Sussex suffer a stroke every year, and many of them will be affected by Aphasia.
Leading member of the board of ‘Say Aphasia’ Colin Lyall said: “Our group meetings were originally set up by ConnectUK, and when they ran into difficulties and closed down last year we were all determined to do our best to continue on our own. Having the support network of fellow survivors is a vital lifeline for all of us and we felt it was important to continue so that we can also offer the facility to other people by inviting them to join us. “
‘Say Aphasia’ meetings are open to anyone who has been affected by Aphasia, whether through stroke or other life affecting acquired brain injury, both patients and their families.
“We plan to have regular presentations and workshops on subjects of particular interest to our members,” Colin Lyall continues: “and we are currently looking for fund raising opportunities so that we can expand our centre in Hove and possibly into other areas in Sussex and potentially further afield.”
Information about ‘Say Aphasia’ can be found on their website: www.sayaphasia.org